When Vision Changes

As most of my friends know, several years back I lost a significant amount of my physical vision. Back in October of 2012 I had a swift onset of Idiopathic Intracranial Hypertention, which ultimately claimed 85% of the vision in my right eye, and about 60% of the vision in my left eye. Leaving me with zero peripheral vision, a label of legally blind, unable to drive ever again, and a new perspective on life.


The first year after the diagnosis was hands down the hardest. Getting used to my new reality, understanding my limits without limiting myself, the learning to give myself a lot of grace in the process. There are still hard days (weeks, and months even). But what I have come to find is that not just my physical vision changed. I have found myself in a whole new place! Let me back up a little bit. Before my vision changed I was a full time working momma. I was struggling big time at life. My marriage was going through hard stuff. Work was grueling. I had a 3 year old who was absolutely the best gift I'd ever been given, and the most challenging obstacle I'd ever encountered up to that point. I felt like I was being pulled in a million different directions all at once, and was not doing any of the things well. I was good at my job, I loved working at the L'Oreal Bentonville office. My team was amazing, and lots of fun to be around. It was the first job in my whole career that I actually didn't dread going to work every day - because I enjoyed the people I was around. But I also felt like I wasn't giving my marriage, and my child nearly enough of me. And there were just no good options. I felt like I was just slogging it out.


Looking back I can see that God set me on that path in order to set me up for the next phase. Because of where I was, I was able to utilize amazing health insurance benefits that kept us from major financial ruin when my health catastrophe hit. It also meant that I was able to secure long term benefits once it was confirmed that my vision would never return. But these were just things to maintain care of myself and my family. God had/has bigger plans for what happened.


Over the years I have been amazingly blessed by the women that have come around me and offered love and support. Whether it be a ride to the grocery store (Hello Teena Taxi Ladies!), or friends that stop by to chat "just because". The body of Christ has really been there for me in ways that are just amazing. It has taken me a long time (and sometimes I still struggle) to get used to accepting help. But I have found that - if nothing else - it is an amazing way to start a relationship. Many of the ladies that I so lovingly call my Teena Taxi Ladies I had never met before they volunteered to drive me around. Now - I love them all dearly and call them all friend.


So for this introvert - it's been a good thing that I have to call on others, and ask for help. Because if I had simply been a stay at home mom when I felt like I wanted to be, my life would not be nearly as rich in relationships as it is now. It's so easy for us introverts to hole up and go about our day to day without ever popping our head out of our holes to see who or what could use our assistance. But now, I'm finding that the more I spend time around the ladies in my circles, the more enriched my days are. So even though I may be bent on my introvert ways, I recognize that it's not always healthy for me to stay there. So now I challenge myself as often as I can build the emotional energy to do so, to engage with others and live in community. Bring it all; the good, the bad, the ugly.

So, what's next?

That is a question I find I am constantly asking myself. To which I seldom find the answer that fully satisfies. I feel as though I've been munching on popcorn to hold me over when what I really need is a steak and potato. This limbo land wreaks havoc on my planner tenancies. So while I wait for clarity on future movement I'm going to reflect on where I've been and where I'm at now. 

This last year has been insane for me. Mid October will mark 1 year since I was sick/diagnosed with Idiopathic Intra-cranial Hypertension. It also marks the last time I worked in an office. Little did we know then the permanent changes that would follow. Little did we know then the terrible damage that was taking place that would forever alter my path in life. 

You see, not only did this illness effect my career, it effected my freedom. I was no longer able to drive. Truly no one can fully understand the helplessness that a very stubborn, very independent grown woman feels when freedom has been ripped away so suddenly, until you have walked it first hand. I do not have the ability to simply get up and go if and when I please. 

Not only did this sudden illness effect my career and my freedom, it altered the course of our family plan. My husband and I had just begun discussing when/if we should bring more children into the picture. Natural and or adopted was the question on the table. Now the idea of natural children seems too risky. 

I've held strongly to the fact that I know God has a plan, and I know it has to be better than anything I could possibly plan for myself. But golly, it's hard not knowing what comes next. I've busied myself this year with increasing my mobility and gaining confidence in going out on my own. I've been aided by some amazing women who volunteered to help take me out once a week for errands and appointments (See Teena Taxi Team). Each of these women hold a special place in my heart for the role they've played in helping me regain my freedom. I've recently conquered both crowded ball games in the dark and crowded airports. Which one year ago would never have been more than an inconvenience. Now, thanks to proper training and lots of personal cheerleaders I know I can tackle these things again.

Another struggle I've had to work with, is how people change. Either better, or worse. I have been abundantly blessed by some pretty amazing people that have stepped up to help me. Most of whom I had never even met before. Without these people I truly would not be in the good place I am now. Then there are others who I considered myself very close to, who for whatever reasons have distanced themselves from me. That's been a hard pill to swallow. I've asked myself far too often "what did I do to deserve this?" or "what's so wrong with me that you don't want to be around me?" And for better or worse those thoughts have all stayed in my head or have only been voiced to my sweet husband and my amazing mother. Then along came yet another group of women, who I got to serve with. Each of us broken in our own way. These women have been sweet salve on my broken heart. We celebrate our brokenness, we celebrate our shortcomings, and most importantly we celebrate each other. 

So, what is next? I still don't have any idea. But whatever it is, I have this feeling it's something big, and glorious. So while I wait for Him to start writing the next chapter,  I'm getting the paper and the pen and ink ready.


Photo Courtesy of a dear friend; Mimi